Nov. 24th, 2004

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So I finally got a call by the doctor who's running the SUIT study, after my e-mail had been forwarded by the secretary I'd written to earlier this week.

TMI )

His "bedside" manner is certainly under par. I'm willing to chalk part of this up to cross-cultural differences, part of this up to stress. He's only part time on the study, the main funding having run out. However, I'm also quite vulnerable right now, and this is not what I hoped for - I hoped for people who care. I think a long talk with my husband is on the cards tonight once I'm home from the course. I'm sick and tired of being treated like a thing. I want proper care and support, and I won't get that from a stressed-out Indian male doctor or from a clueless Icelandic female registrar or from a newbie British registrar.
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So my husband and I had The Talk about our fertility treatment. He was not impressed by the response from the SUIT study doctor - it just cemented his bad opinion of Edinburgh Reproductive Medicine Services. My husband is also majorly freaked out by IVF as a procedure - he wouldn't want to undergo it, were he a women. And he most certainly doesn't want me to undergo it in the stressful, unsupportive environment that is Edinburgh Royal Infirmary. They may be world-class medically, but there is no continuity of care, and nobody to talk to when you need your questions answered.

Me? I want a child. And even if we start the adoption process now, I'll be 36 or 37 once we get our child. I don't want to add 3-4 years onto that just because I HAD to have that shot at a couple of cycles of free IVF.

OK, so I don't suffer from a "real" disease, I'm just unable to have a baby. But I believe that if you offer a service, you should offer it properly or not offer it at all.

The upshot?

No SUIT study. We will phone Dr Kini tomorrow.

No IVF. My husband will write a letter to Edinburgh Fertility tomorrow.

One more year of trying, then adoption.

Yet again, NHS patient care saved the system considerable expenses.

Result.

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Percival

December 2010

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