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[personal profile] percival
What an anticlimax.

I arrived on time, to be shown into the consulting room at five minutes past the appointment time. The doctor who awaited me there was an Icelandic woman who'd just started her specialised post-grad training in Edinburgh. Brynja Ragnarsdottir. The third doctor in as many appointments - never a consultant. The first doc we saw was a young trainee with somebody else to guide her, the second a registrar, and now this new arrival on the block.

So far, so good. Now, you will remember that I was quite looking forward to this appointment. I thought this was where our options would be discussed in detail, where we'd be given advice and counsel. The registrar had already informed us of our options in March, prior to the hysterosalpingogram.

The doc's opening words were, after some introductory banter: "I see you've already been advised on your options, and there's nothing wrong with you. What do you want to do?"

For FUCK's sake, woman. Don't you realise that this is the first appointment after all the results have come in? We'd been promised an in-depth discussion of our case in March!

"You must have had plenty of time to reflect on your options between March and now."

So we were supposed to come with our minds all made up? Can we have some more information about the infertility study please? Where and when do we sign up? How will signing up to the study affect our status on the IVF waiting list? This infertility study is Scotland-wide. It's an investigation of what treatment to offer infertile couples while they are waiting for IVF. There are three alternatives: hormone therapy, Intrauterine Insemination (IUI), and instructions on when to have intercourse. We've known about it for a long time, and I know somebody who got pregnant on the study through IUI.

"Oh, all the info's on the leaflet. Didn't you already contact those people? And I don't know about that. I'll go ask."

(To be fair, she was much nicer than this summary suggests. She did her best given the circumstances. She was also less direct, but this is the gist of what she said.)

I almost cried with frustration and anger.

To cut a long story short, I ended up directing the conversation. Sensing my hurt, anger, and confusion, she did her very best to get me all the information needed. I.e., we'll be contacted by somebody or other about the study, and she'll write to the IVF consultant to get us an appointment. That will take 4-6 weeks, and once we've had the appointment, we're officially on the two-year waiting list. Great, that could have been set in motion months ago, right after the HSG. The only good thing that's come out of it is that now, after one and a half years in the system, I'm finally getting an abdominal ultrasound, because the Icelandic doctor thinks it's a good idea. Go Brynja!

After this lovely meeting, my husband and I went to the Elephant House for a coffee. I don't blame the doctor, but I'm furious at the system. If they're so keen on enrolling people, why don't they offer the opportunity of meeting up with the relevant nurses or doctors while the couple is at the hospital? We don't have all the time in the world, you know. Some people might not like to discuss their fertility at the workplace, or take time off work just to phone some fucking nurse about a stupid trial.

The intermediate results of the trial indicate, by the way, that IUI and a shagging manual have roughly the same success rate. Only IUI is far more complicated - I need to attend the hospital weekly to have my cycle monitored, and then there's the assisted insemination itself. Hormone therapy is less successful than either of the first two options, but still requires hospital trips to get your ovulation monitored.

You know, before that "consultation", I was all up for the trial. Do your bit for other infertile couples, and such like. But with those shoddy chances of success, I'd rather throw myself into my complementary therapies with vigour again. I won't help a system that treats infertile couples on a factory line. This is thoroughly disgusting. I'm glad I've had so much therapy and done so much work. There was no discussion of how we felt, just the assumption we would cope. I'm going the alternative route, thank you very much.


My husband tells me that I should add we had a v. pleasant evening browsing Blackwell's bookstore, and are now enjoying our evening at home, despite telly coming through from downstairs, which is irking me because I'm just so angry with the fertility machine.

Come on, in two years' time, we'll grab our three free shots at assisted conception, and then we're outta here.

Date: 2004-10-06 01:27 am (UTC)
From: [identity profile] hilarityallen.livejournal.com
I suppose it's better than the old days, when you didn't get a chance at free infertility treatment. I get the feeling that it all started as a field in which some hotshot doctor created the first test-tube baby, and got really excited by it, and all the tiny little things that can stop conception or carrying to term got overlooked. Relentless persistence in the shagging department can work out (it did for elder members of my family).
It has just occurred to me: can't they do tests to have a look at your hormone levels, before randomly giving you hormones? Or is that considered too complicated, given that so many of the problems could be to do with implantation, which is happening a few days after sex? [I'm not in any way a doctor (except nearly one of medieval studies), just musing.]

Good luck, though.

Date: 2004-10-07 01:57 am (UTC)
From: [identity profile] perceval.livejournal.com
My hormone levels have already been tested, and my tubes have been looked at. To no avail.

The problem is that reproduction isn't all that well understood, as Sir Robert Winston readily acknowledges. So all modern medical science can do is stab in the dark, with a success rate of 20% per try or less. (Yes, it's that bad.)

The most important aspect of care is ironically that which costs least and which has been available for centuries, but which the current system woefully neglects: Talking, companionship, advice, general help with a healthy lifestyle, relaxation. It's really not rocket science.

Date: 2004-10-15 08:08 am (UTC)
From: [identity profile] hilarityallen.livejournal.com
I didn't realise it was as low as 20%. Damn it, they have more success curing most cancers than that.

Oh well, good luck with taking the time, getting some advice, being calm and healthy etc. It can be a vicious circle, I'm sure. I do hope it works out.

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